DepartDC/Contribute: Take a Bite Out of Lyme

Consider this your official invitation to the Loudoun Lyme 5K Run with proceeds benefiting the National Capital Lyme Disease Association. Lyme disease is the leading tick borne illness in the country and is particularly prevalent in Loudoun County.  Some amazing strides have been made in Virginia with new legislation passed which forces doctors to alert their patients to the inconsistent and often times inaccurate results from the Western Blot test which has been the go-to test for Lyme. Patients are now armed with the information that there are other options, more effective and accurate options for testing. The longer the disease goes undiagnosed, the harder it is to treat and it attacks more organs in your body making you increasingly more ill.  Come on out and support your friends and neighbors that are suffering from this debilitating disease.

When: Sunday, May 19, 2013
Where: Loudoun Valley High School
340 North Maple Ave.
Purcellville, VA 20132
8:00 AM start

13 years and older (free t-shirt)
$30 up until May 14th
$35 – day of event

Children 12 and younger (free t-shirt and goodie bag)
$15 – up until May 14th
$20 – day of event

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Well-Being: New Lyme Testing Bill – Please Support and Act Quickly

Natcaplyme

In a post earlier this year, I shared the story of my best friend of 35+ years who has been suffering with Chronic Lyme Disease for the past few years. It has completely changed her life (and not for the better), and she has spent tens of thousands of dollars in an effort to “feel well” again. Notice I said “feel well” because at this point there is no cure for Chronic Lyme. The only solution is day-to-day management which is costly and exhausting.  There is a preventative measure that could have helped my friend and can potentially help many in the future…early detection. The Western Blot test, the standard Lyme detection test, is known to give inaccurate results nearly 50% of the time and those who think they are Lyme free and in fact not. Education is the key and Dick Black, VA Senator, has sponsored a bill that hopes to educate people as to the facts about early detection and testing. The bills being put forth to the Virginia State Senate,  Senate SB 971 | House of Delegates HB 1933, will garner more patient awareness so that early detection is possible and false positives will not go unchecked.

Please write to the following representatives showing your support for this bill. district11@senate.virginia.gov, district35@senate.virginia.gov, district18@senate.virginia.gov, district32@senate.virginia.gov, district23@senate.virginia.gov, district23@senate.virginia.gov, district14@senate.virginia.gov, district2@senate.virginia.gov, district39@senate.virginia.gov, district6@senate.virginia.gov, district1@senate.virginia.gov, district19@senate.virginia.gov, district8@senate.virginia.gov, district13@senate.virginia.gov, district40@senate.virginia.gov, district22@senate.virginia.gov,DelBOrrock@house.virginia.gov, DelJOBannon@house.virginia.gov, DelRBell@house.virginia.gov, DelCPeace@house.virginia.gov, DelACrockett-Stark@house.virginia.gov, DelPHope@house.virginia.gov, DelRDance@house.virginia.gov, DelBPogge@house.virginia.gov, DelDMerricks@house.virginia.gov, DelDBell@house.virginia.gov, DelSGarrett@house.virginia.gov, DelCStolle@house.virginia.gov, delrrobinson@house.virginia.gov, DelGHelsel@house.virginia.gov,DelJYost@house.virginia.gov, DelMRansone@house.virginia.gov, DelKHodges@house.virginia.gov, DelLSpruill@house.virginia.gov, DelMSickles@house.virginia.gov
, DelAHowell@house.virginia.gov, DelMBaCote@house.virginia.gov

The email can be as simple as: Please support Senate SB 971 and House of Delegates HB 1933.

You can read more about the bill and learn about National Capital Lyme Disease Association by clicking the following link.

If you already suffer from Lyme disease or know someone that does, there are Chapters throughout the state where you can learn more about treatments and talk with others for support. Click here to find a Chapter near you.

Loudoun Lyme 5K Run/Walk

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Three years ago my best friend of 35 years was diagnosed with Lyme disease. I watched her go from a vibrant, active woman to someone that could barely move or get out of bed.  The disease had taken over her body.  All her organs including her brain had been affected.  She had memory loss to an alarming degree, lost a substantial amount of weight and had the joint pain of a 95 year old arthritis sufferer at the age of 37.  Fortunately, she was able to find and afford medical care to put her on the path to recovery.  Many are not so lucky. 

It is quite difficult to find a doctor that believes it is even a real disease.  Others think a course of anitbiotics will solve the problem.  It doesn’t.  And if you are lucky enough to find a doctor that believes Lyme is real AND is Lyme Literate, you truly have a guardian angel. BUT you then have to find a way to pay for the treatment which is mostly NOT covered by helath insurance.  My best friend spent nearly $25,000 last year for her treatment and that of her daughter who is also a Lyme sufferer.

Living in Loudoun County, where the incidence of Lyme is the highest in the state, I can safely say that 90% of the people I know either have Lyme, a member of their family has Lyme or knows somebody with Lyme.  Lyme disease is a bacterial spirochete transmitted by ticks usually showing itself by a bullseye rash located at the site of the bite. You cannot count on the rash as a tell tale sign because it is not always present.  One thing is for certain, it is an absolutely debilitating disease for which there is no cure and the treatment is intense and lifelong.

So let’s put a “bullseye” on Lyme disease Sunday, May 6th at the Loudoun Lyme Walk being held at the National Conference Center in Lansdowne from 8-11AM.  If you pre-register, you will get a t-shirt and goodie bag!  In addition to the run or walk, depending on your preference, there will be vendors on hand and information about Lyme and ways to prevent infection.  Come out to help find solutions to the ever blossoming problem of Lyme disease.

***Specialicious is also running a special through , I believe, midnight 4/27 for discounted entry to the 5K Run/Walk.***